How to Live Without a Bladder?

Follow your surgeon’s and urologist’s instructions exactly

Use the bladder replacement or urinary diversion you were given, such as:

Ileal conduit

Continent catheterizable pouch

Neobladder

Empty the pouch or catheterize on the schedule prescribed

Keep all follow-up appointments

Monitor urine output and color

Watch for signs of infection

Fever

Chills

Pain

Cloudy or foul-smelling urine

Watch for signs of dehydration

Dry mouth

Dizziness

Dark urine

Maintain good stoma or catheter hygiene

Change ostomy supplies as directed

Clean the skin around the stoma regularly

Keep the catheter or drainage system clean

Stay hydrated unless your doctor tells you otherwise

Avoid holding urine too long if you have a neobladder or continent pouch

Learn how to irrigate or flush the system if instructed

Check for leaks, blockage, or reduced output

Protect the skin from irritation

Wear loose clothing if needed for comfort

Carry spare supplies when leaving home

Know when to seek urgent care

No urine output

Severe abdominal pain

Vomiting

Blood clots

Stoma color changes

Ask about diet, activity, and sexual health after surgery

Take prescribed medicines and supplements as directed

Join a support group or patient education program if helpful

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